Saturday, April 22, 2017

The Balancing Act of Chronic Illness

It is 2:30am on a Friday night. My body has been screaming at me for hours. My pain level canceled out my sleeping meds. Yet still it is just now that I have gotten up to take a pain pill. 

I have been taking psychiatric medications since I was fifteen. Medications do not bother me. I know they are sometimes necessary. 

I am not worried about what other people will have to say. I have gotten unsolicited advice many times before. It does not phase me. I don't care what other people who are not inside my skin have to say. 

So why won't I take the pain meds that are in my cabinet?

I honestly don't know the answer to that question. I think part of it is because they aren't prescribed for the reason I'm taking them. They are left overs from my surgery and my car accident. When I saw a pain management doctor I was told I was not in enough pain for him to manage me. 

If I was not in enough pain shouldn't I be able to handle it? Shouldn't I be able to do like he says and exercise more and it will all be okay? 
The logical part of me says no. I know my body. I know he didn't understand how bad my pain was. I know the exercise I'm capable of and what I'm doing. 

Maybe it's a denial thing. I'm worried that once I start taking pain meds I'll never be able to stop. Not in an addiction sort of way. I'm not worried about becoming addicted. I am very careful and the medication I have is non-habit forming. More in a "this is my life now" sort of way. 

I guess I'm still learning. I'm still learning how to manage my pain. I'm still learning how to listen to my body and answer its needs. Chronic illness is a whole new rollercoaster I have never ridden before. I'm still learning what are the acceptable changes that I can make without doing something that will take away my independence in the long run. I've had two experiences with this lately. 

I stopped using the crutches I had been using for the past few months in hopes that walking more would help build the muscles in my legs. I'm training my Psychiatric service dog to do some mobility tasks for me and she's doing awesome, but she can't take the pressure off my worse hip the way the crutches did. Due to this my hip joint has slipped out of place a couple times this week. I knew this would happen. I was prepared for this to happen, but it's caused my pain levels to be higher than normal. 

This is the first week this semester that I have walked around campus without the crutches and I'm hoping that with time it will get better. 

The second experience happened last week over Spring Break. I've been having a lot of muscle weakness in my legs lately especially in the mornings. I have to take a shower in the mornings and sometimes my legs just don't want to hold me up. This leads to me missing a shower sometimes (thank you dry shampoo and wipe baths). 

When I was home for break a couple days I sat down in the tub for my shower. This helped when my legs were weak and it helped with the fatigue that comes after taking a shower. 

I mentioned to my mom that I wanted to take a stool back to school to sit on in the shower some days. Trust me, no one wants to sit on a dorm shower floor. She really urged me not to, worried that if I start sitting to do the things I usually stand to do that I would lose the ability to do them standing. 

I understand her concern. I know it's a lot easier to lose muscle than it is to gain muscle. I'm doing physical therapy exercises everyday trying to gain muscle and it doesn't come easy. I'm still trying to find a balance though between what I should and should not do. 

It's the same with the medication. I'm trying to find a balance that will work with my life. I know I will find it. I know it's possible for me to have a good, happy, and productive life. All things in time. 

1 comment:

  1. I totally understand this. I also dreaded and fought my temporary wheelchair because I was scared that I would never get rid of it again. Same with the chair for the shower. Never did that because it made me feel handicapped and I fought against that with all I had. I would have helped me though. I have the same thing with melantonin, sleep meds that you can get anywhere and aren't supposed to be addictive. Still won't take them for hours after going to bed, not sleeping. I think it's just hard accepting chronic illness because chronic illness just is not okay. It will never be okay to me.